by Kerryn Csik | Aug 9, 2022 | HYDRO WARRIORS
I was born with a severe case of hydrocephalus, mild cerebral palsy, and a brain injury. The VP Shunt prevented any cerebrospinal fluid from entering the ventricles into my brain. Before the procedure, my parents were told that the CT Scan showed 98% of my skull full...
by Kerryn Csik | Aug 9, 2022 | HYDRO WARRIORS
WRITTEN BY MOTHER DANNI Our son, Noah, was diagnosed at 7.5 months old with congenital hydrocephalus due to acqueductal stenosis. From 4-6 months of age his head began growing rapidly compared to his height and weight and a scan at 7 months old confirmed...
by Kerryn Csik | Aug 9, 2022 | HYDRO WARRIORS
JOURNEY AS TOLD BY MOTHER AMANDA Addison was born six weeks prematurely and spent a week in the Neonatal Intensive Care Unit at Nepean Hospital, Penrith. She had to have CPAP Oxygen for the first two days of her life and spent the next five days in a humidicrib. We...
by Kerryn Csik | Aug 9, 2022 | HYDRO WARRIORS
JOURNEY AS TOLD BY MOTHER KERRYN During routine baby checkups at 8 weeks old, Henry’s GP had noticed that his head circumference had rapid growth since his previous checkup. From a short time after birth, Henry’s eyes seemed to look a little alarmed, which progressed...
by Kerryn Csik | Aug 9, 2022 | Uncategorized
JOURNEY AS TOLD BY LUCAS My hydrocephalus journey started 14 years ago soon after I was born at 25 weeks gestation in Perth WA. I ended up with post meningitic hydrocephalus with aqueductal stenosis which started a roller coaster ride of surgeries, recoveries,...
