Who we are
Our website addresses are underpressureforhydro.org.au and hydrocephalus.org.au. Both websites represent the Hydrocephalus Support Association (HSA).
When visitors leave comments on the site we collect the data shown in the comments form, and also the visitor’s IP address and browser user agent string to help spam detection.
If you upload images to the website, you should avoid uploading images with embedded location data (EXIF GPS) included. Visitors to the website can download and extract any location data from images on the website.
When you create an account with us your details will be added to our marketing database to receive information from us relating to The Hydrocephalus Support Association and any of our services, events, campaigns and information packs. You may also choose to receive such information by subscribing to our marketing database via one of our websites.
To opt-out of receiving marketing materials you will need to unsubscribe from our marketing database. To do this, simply select the “unsubscribe” option in one of the emails that you receive from us. Please note that if you have an account with us which you have used to purchase products we may still need to send you essential information about your account. If for any reason you cannot unsubscribe successfully, please contact firstname.lastname@example.org and we will manually complete the unsubscribe process.
SHARING YOUR PERSONAL INFORMATION
The Hydrocephalus Support Association may disclose or receive personal information or documents about you to / from: – organisations that provide services to us in connection with our business, including customer support, payment processing, administration, archival, data storage, hosting, research, mail and delivery, installation, distribution, logistics, marketing, auditing, share registry, consulting, financial and legal advisory, banking, debt collection, security or technical services and the operation of the websites; and – third parties with whom we have referral arrangements, for the purposes of direct marketing and/or providing their services to you.
WHAT PERSONAL INFORMATION DOES THE HSA COLLECT?
The kinds of personal information we collect or which we may hold about you may include: your name; your address; your date of birth; your telephone number(s); your e-mail address; payment information; transaction information; your username and password; information on how you use our products and services; your Internet Protocol (“IP”) address, server address, domain name and information on your browsing activity when visiting one of our websites; your user name for social networking sites that you use, to refer to, or in conjunction with, our goods and services; and personal preferences regarding products and services.
HOW DOES the hsa COLLECT AND HOLD YOUR PERSONAL INFORMATION?
If you leave a comment on our site you may opt-in to saving your name, email address and website in cookies. These are for your convenience so that you do not have to fill in your details again when you leave another comment. These cookies will last for one year.
If you visit our login page, we will set a temporary cookie to determine if your browser accepts cookies. This cookie contains no personal data and is discarded when you close your browser.
When you log in, we will also set up several cookies to save your login information and your screen display choices. Login cookies last for two days, and screen options cookies last for a year. If you select “Remember Me”, your login will persist for two weeks. If you log out of your account, the login cookies will be removed.
If you edit or publish an article, an additional cookie will be saved in your browser. This cookie includes no personal data and simply indicates the post ID of the article you just edited. It expires after 1 day.
Embedded content from other websites
Articles on this site may include embedded content (e.g. videos, images, articles, etc.). Embedded content from other websites behaves in the exact same way as if the visitor has visited the other website.
Who we share your data with
If you request a password reset, your IP address will be included in the reset email.
SECURITY OF YOUR PERSONAL INFORMATION
We will take reasonable steps to ensure that the personal information that we hold is stored in a secure environment protected from misuse, interference and loss and any unauthorised access, modification or disclosure. If one of our staff members identifies a data breach, the person in which the data refers to will be notified immediately and steps will be taken to prevent any further breaches. If the data breach meets the guidelines outlined in the Notifiable Data Breach scheme, the commissioner will also be notified.
How long we retain your data
If you leave a comment, the comment and its metadata are retained indefinitely. This is so we can recognise and approve any follow-up comments automatically instead of holding them in a moderation queue.
For users that register on our website (if any), we also store the personal information they provide in their user profile. All users can see, edit, or delete their personal information at any time (except they cannot change their username). Website administrators can also see and edit that information.
What rights you have over your data
If you have an account on this site, or have left comments, you can request to receive an exported file of the personal data we hold about you, including any data you have provided to us. You can also request that we erase any personal data we hold about you. This does not include any data we are obliged to keep for administrative, legal, or security purposes.
Where your data is sent
Visitor comments may be checked through an automated spam detection service.
HOW TO MAKE A COMPLAINT
If you are concerned that the way The HSA collects, holds, uses or discloses your personal information may be in breach of the Australian Privacy Principles, please send written details of your complaint to The Privacy Officer, The HSA, by email to email@example.com.
HOW The HSA WILL HANDLE COMPLAINTS
After receiving a complaint, we will consider whether we need any further information from you to properly consider and investigate the complaint, and may request such information from you. We will then: conduct internal discussions with the relevant business units involved in the collection, holding, use or disclosure of your personal information which is the subject of your complaint, and evaluate whether we believe that such collection, holding, use or disclosure of your personal information was in breach of the Australian Privacy Principles; and notify you of the results of our investigation of your complaint.If the conclusion of our investigation is that our collection, holding, use or disclosure of your personal information was in breach of the Australian Privacy Principles, we will take steps to remedy the breach as soon as reasonably practicable. We will endeavour to notify you of the results of our investigation of your complaint within 30 days of receiving your complaint. However, if your complaint involves complex matters or requires extensive investigation and consultation, it may not be possible to respond within this timeframe.If you are not satisfied with our response to your complaint you are entitled under the Privacy Act 1988 (Cth) to make a complaint to the Office of the Australian Information Commissioner. Information about how to make a complaint is available from the Office of the Australian Information Commissioner’s website.